Meet our Board of Directors
Mrs. Jessica Ives, Founder & President, Bel Air, MD
Jessica Ives, mother of Ethan has her BS in Sociology and MA in Marriage and Family Counseling from Indiana Wesleyan University. She is a Licensed Professional Counselor, is a Certified Supervisor for Counselors, and received her Registered Play Therapy Certificate from the Association for Play Therapists.
Jessica's passion for starting this foundation came from her frustration with her own son's diagnosis and having no research or connection with other families. Jessica feels her compassion for other people gives her a connection with other parents who are in a similliar situation.
Jessica's son Ethan was diagnosed with a left CPA Arachnoid Cyst at the age of 3 but she and Dustin were never given a "real" diagnosis, just told he has a cyst and come back at age 8 and have follow up MRI. At the age of 8 the real diagnosis was given on May 24, 2013 with their new Neurosurgeon. Ethan's Arachnoid Cyst had grown by 30% and was pressing on his brain stem. Two weeks later Ethan was having a craniotomy fenestration. Ethan's Arachnoid Cyst decreased in size after surgery and Ethan immediately could hear much better and did not speak as loud even though he did not have hearing loss. In October, that same year they found out that Ethan's cyst had grown back to almost the previous size pre-surgery. It was then Jessica decided enough was enough and in November 2013 PACF was officially founded to raise awareness, help families, and pursue research. PACF officially became a 501(c)(3), May 18, 2015.
Mr. Dustin Ives, Vice President, Bel Air, MD
Dustin is the father of Ethan. Dustin has his BS in Christian Ministries from Indiana Wesleyan University, his Masters in Biblical Studies from Regent University. Dustin is a Baltimore City Teaching Residency alum and now teaches middle school in Baltimore City. Dustin loves reading, going to Cape Cod, and spending time with his family. He is passionate about seeing kids with Arachnoid Cysts getting awareness.
Mr. K. Blair Sirman II, Treasurer, Newark, DE.
Bio coming soon
Mrs. Heather Gaskins, Secretary, Alexandria, VA
Heather Gaskins has over 20 years experience in fundraising. She has spent her career building corporate fundraising programs for non-profits mostly in the STEM education arena. Heather began her career at the Association for Fundraising Professionals raising money for their foundation working with many of the greats in the fundraising world. She has also worked for many notable organizations such as MATHCOUNTS, National Engineers Week, Destination Imagination, National Head Start Association and currently is working with the Federal Bar Association.
Heather lives with her husband, Elliott, VP of Development for National Capital Area Alzheimer's Association and three children, Bryce Carter and Emma Belle in Springfield, Virginia. They are very active in the community and stay busy between their work events and the children's sports commitments.
Mr. Lee Hinshaw, Washington, D.C.
Lee has worked in the Pharmaceutical and Medical Supply business for over 35 yrs. During those years he was a pharmacy technician (both retail & in-patient hospital settings), pre-filled insulin technician, certified orthopedic brace/mastectomy fitter and customer service representative. He is a caregiver to people with HIV/AIDS.
Mrs. Casey Baynard Trappe, MD
Bio coming soon
Mrs. Kirrilie Flanagan, Melbourne Australia
Kirrilie has worked in home and community care, caring for the elderly and disabled giving respite care to families with disabled children. Kirrilie then began a family with her husband Anthony. She now has a 7 year old son Liam and two daughters Maggie and Heidi aged 5 and 1.
Liam, from a baby was developmentally behind other children. His head circumference was off the charts from 8 months old. Liam had issues with fine and gross motor skills and low muscle tone; he was highly emotional and had social anxiety with every one excluding his parents and sister. We went to the GP and many different Pediatricians but at no stage were they concerned. When Liam was 3, I obtained an independent assessment from a child psychologist specializing in Selective Mutism. Using early intervention techniques from the age of 4, we were able to help Liam to communicate non-verbally and eventually verbally. When Liam started school a decision was made that we should apply for funding for an occupational therapist. To do so he underwent various tests then a decision was made for Liam to have an MRI. Liam was diagnosed with an Arachnoid Cyst in his left frontal temporal lobe measuring 10cm x 8cm x 6cm. His skull was measured at 57.5 cm and growing (0.5cm in 6 months). His Neurosurgeon said it would be best to put in a VP shunt. This happened just before his 7th Birthday in November; it has been eight months since his operation. His fine and gross motor skills have improved to the point that he is almost like his peers. His confidence has grown which has helped improve his social anxiety and he is happily talking to all students and teachers within the school.
There are many issues to work on from the effects of the Arachnoid cyst and the pressure it was putting on those lobes. It will be a long journey to get Liam to feel comfortable and to be happy being himself, but the change in eight months has been heart warming and very encouraging.
Mrs. Shelly Beadles, Nathalie Virginia
Bio coming soon
Dr. Robert F. Keating, Washington, D.C.
Medical Advisory Board Member Since January 2014
Dr. Keating joined the Department of Neurosurgery at Children’s National Medical Center in 1996. He was previously at the Albert Einstein College of Medicine / Montefiore Medical Center in the Bronx after serving as Commander in the Navy in Oakland, California as the Chief of Neurosurgery. After receiving his MD from Georgetown in 1983, Dr. Keating completed his residency as well as fellowship training (pediatric neurosurgery and craniofacial) at the Albert Einstein College of Medicine and Montefiore Medical Center. Currently, he is Professor and Chief of Neurosurgery, as well as President of the Medical Staff and is the section leader for pediatric neurosurgery and neurology of the US News and World Report for hospital rankings. Dr. Keating is also a member of the medical advisory board for the American Syringomyelia and Chiari Alliance Project as well as being involved with the National Foundation for Facial Reconstruction as a member of the practice guidelines committee. In addition to numerous presentations on an international platform, as well as multiple publications regarding brain tumors, Chiari malformations, craniofacial reconstruction, spinal dysraphism, and hydrocephalus, he has completed his third text, Tumors of the Pediatric Central Nervous System.
Dr. David F. Jimenez, MD, FACS, San Antonio Texas
Medical Advisory Board Member Since March 2014
Internationally recognized pediatric neurosurgery expert David F. Jimenez, M.D., serves as the Chairman and a Professor of the Department of Neurosurgery at The University of Texas Health Science Center at San Antonio. He has served in a leadership role in residency education since 1994 and as a Residency Program Director for twelve years. He currently oversees a 6000 annual case load program with two residents per program year. Prior managerial and academic appointments include 12 years of both neurosurgery director and tenured professorial positions at the University of Missouri-School of Medicine and University of Missouri Hospital and Clinics (Columbia). His areas of expertise in the surgery suite and research lab have always focused on both pediatric and general neurosurgery.Dr. Jimenez’s list of medical honors and awards is quite extensive, reflecting his lifetime work as a thought leader, sought-after lecturer, educator, well-funded researcher and prolific writer. He has presented abstracts, posters or lectures at well over 250 local, national and international meetings; contributed material to almost two dozen neurosurgical books, and published over 65 papers.Dr. Jimenez has appeared as a guest on local and national TV and radio programs, including the Discovery Health Channel (profiled as a “Super Surgeon”), Trauma, Life in the ER and ABC’s Good Morning America. His life-changing neurosurgical pediatric practice has been profiled in numerous healthcare and general interest publications of local and national scope. In addition, he is a member and long-time leader in professional societies such as the American Association of Neurological Surgeons, Congress of Neurological Surgeons, American College of Surgeons, and the American Cleft Palate-Craniofacial Association.This dynamic physician received his B.A. in psychobiology and medical doctorate from Philadelphia’s Temple University, which also provided valuable neurosurgery residency experience. St. Christopher's Hospital for Children (Philadelphia) and the Albert Einstein College of Medicine’s Montefiore Medical Center provided further post-graduate neurosurgery training. Dr. Jimenez is a Fellow of the American College of Surgeons and the American Academy of Pediatrics. Board Certified as a neurological surgeon and pediatric neurosurgeon, he holds licensures in three states.
Dr. David Sandberg, M.D., FACS, FAAP, Houston, Texas
Medical Advisory Board Member Since February 2016
David I. Sandberg, M.D., FACS, FAAP, is fellowship trained in pediatric neurosurgery with a special clinical and research interest in pediatric brain tumors. Dr. Sandberg specializes in minimally invasive endoscopic approaches to brain tumors, hydrocephalus and arachnoid cysts, as well as surgical management of arteriovenous malformations of the brain, congenital spinal anomalies, spasticity and craniofacial anomalies. He has developed novel treatment approaches for certain types of brain tumors in children.
A graduate of Harvard University, Dr. Sandberg received his medical degree at the Johns Hopkins University School of Medicine. He completed neurosurgery training at the Weill Medical College of Cornell University/New York Presbyterian Hospital. During residency, he was awarded the Resident Traveling Fellowship in Pediatric Neurosurgery by the American Association of Neurological Surgeons and Congress of Neurological Surgeons, which he completed at the Hospital for Sick Children in Toronto, Canada. He then completed pediatric neurosurgery fellowship training at the Children’s Hospital Los Angeles. Before joining UTHealth Medical School, Dr. Sandberg served as associate professor of clinical neurological surgery and pediatrics at the University of Miami Miller School of Medicine.
In addition to his appointment at UTHealth Medical School, Dr. Sandberg is a clinical associate professor in the department of Neurosurgery and division of Pediatrics at The University of Texas MD Anderson Cancer Center, and serves as co-director of the Pediatric Brain Tumor Program at MD Anderson Children’s Cancer Hospital. The recipient of numerous research grants, Dr. Sandberg is currently investigating direct administration of chemotherapy into the fourth ventricle for treatment of malignant posterior fossa tumors of childhood.